Luke's home IV infusions will begin soon. He will be receiving high dose Gamunex-C two days in a row every 4 weeks. These infusions will take around 6 hours each day. He is also scheduled to be admitted to the Epilepsy Monitoring Unit for several days later in October. We have consulted with Cochlear Americas and Luke is not able to have a brain MRI due to the magnets surgically attached to his skull bone. Even if they were to remove them, the shadowing would make the results useless. We are still trying to a lumbar puncture scheduled as both his neurologist and pediatrician want it done.
Since the Autoimmune Brain Disease Clinic at Duke denied Luke into their program, Banner Clinic in Arizona is reviewing his case for the second time. Our pediatrician was told that Banner preferred for Luke to be followed by a clinic closer to us geographically, but since that is no longer an option-they may take on Luke's case. That being said, it is possible that we may be traveling to Arizona in the future.
We are so thankful for the following individuals and their family who sacrificially donated towards Luke's medical treatment:
Daniel Blink , Elijah Caudill, Luke Kerry
Kevin McCarthy, Ben Uloko, Michaela Scott
Amber Esch, Karsyn Bell, Alyssa Yanez
Nathaniel Hargrove, Gracie Comer, Melvin
Argueta
Payten Gray, Zachary Covely, Dylan Parker
Dalton East, Brendan Popella, Dante Mckenzie
Brent Rutledge, Gabriel Tedder, Sam Elter
A Dunbar, Valerie Wieners Massie, Tracy Stimpson
Kelly Bunch, Oscar Pecina, Jayne Warbinton
Ada Goren, Corrie Weaver, Betsy McCarren
Lauren Blevins, Kristin Thomson, Valbona B
Carley Jolley, Christina Knickle, Jim Ciesielski
Wanda Curley, Laura Wayland, Michael Young,
Jenni Carowan, Robert Cline, 3 anonymous donations
If you would like to contribute, click on this link Luke's GoFundMe
-The Crawford Family
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